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Our Curse
5.8/10 by 12 users
Title:Our Curse
Release: 2013-05-28
Runtime: 27 min.
Genre: Documentary
Stars: Tomasz Śliwinski
The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.